- PPMD’s Race to End Duchenne Team Member Claims Victories in Both 5K and 10K as Community Raises Funds for Duchenne and Becker Research and Care
by Parent Project Muscular Dystrophy on January 12, 2026 at 5:04 pmPPMD celebrated a powerful and inspiring Walt Disney World® Marathon Weekend as part of its Race to End Duchenne endurance fundraising program this past weekend! PPMD runners, families, and supporters came together in Orlando, Florida,… The post PPMD’s Race to End Duchenne Team Member Claims Victories in Both 5K and 10K as Community Raises Funds for Duchenne and Becker Research and Care appeared first on Parent Project Muscular Dystrophy.
- Watch: Capricor Therapeutics — HOPE-3 Community Update (Webinar Recording)
by Parent Project Muscular Dystrophy on December 22, 2025 at 7:34 pmPPMD recently held a community webinar with Capricor Therapeutics, during which the company shared their most recent results from the Phase 3 HOPE-3 trial evaluating deramiocel (CAP-1002), Capricor’s investigational cell therapy for the treatment of… The post Watch: Capricor Therapeutics — HOPE-3 Community Update (Webinar Recording) appeared first on Parent Project Muscular Dystrophy.
- Historic Victory: Duchenne Added to the Recommended Uniform Screening Panel (RUSP)
by Parent Project Muscular Dystrophy on December 16, 2025 at 4:10 pmToday marks a monumental victory for the Duchenne community. The U.S. Department of Health and Human Services (HHS) has officially added Duchenne to the Recommended Uniform Screening Panel (RUSP)—the national list of conditions recommended for… The post Historic Victory: Duchenne Added to the Recommended Uniform Screening Panel (RUSP) appeared first on Parent Project Muscular Dystrophy.
- Dyne Therapeutics Announces Positive Topline Results from Phase 1/2 DELIVER Trial of Z-Rostudirsen in Duchenneby Parent Project Muscular Dystrophy on December 8, 2025 at 1:47 pm
Dyne Therapeutics has announced positive topline results from its Registrational Expansion Cohort (REC) of the Phase 1/2 DELIVER trial of zeleciment rostudirsen (z-rostudirsen, also known as DYNE-251) in people living with Duchenne who are amenable… The post Dyne Therapeutics Announces Positive Topline Results from Phase 1/2 DELIVER Trial of Z-Rostudirsen in Duchenne appeared first on Parent Project Muscular Dystrophy.
- Honoring Every Journey in Duchenne and Becker: Advancing Therapies, Access, and Care For All
by Parent Project Muscular Dystrophy on December 5, 2025 at 4:44 pmFor more than three decades, Parent Project Muscular Dystrophy (PPMD) has been committed to bringing therapies closer to, and improving care for, every person living with Duchenne and Becker muscular dystrophy. The Duchenne and Becker… The post Honoring Every Journey in Duchenne and Becker: Advancing Therapies, Access, and Care For All appeared first on Parent Project Muscular Dystrophy.
