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MDA’s Guide to the Rehabilitation Act of 1973
The Rehabilitation Act of 1973 (Rehab Act) laid the foundation for disability civil rights in the United States, serving as the first major federal law to prohibit disability-based and establish accessibility requirements in federally funded programs and services. Joel Cartner For people living with neuromuscular diseases and other disabilities, the Rehab Act helped transform access…
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FDA review begins for full approval bids on 2 Duchenne therapies
The U.S. Food and Drug Administration (FDA) is expected to decide by Feb. 28, 2027, whether to grant traditional approval to Amondys 45 (casimersen) and Vyondys 53 (golodirsen), two exon-skipping therapies designed to treat certain people with Duchenne muscular dystrophy (DMD). Both medications are currently approved in the U.S. under the FDA’s accelerated approval pathway,…
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The search for better accommodations for my disease progression continues
If you’ve read my last few columns, you’ll know that I’m struggling with a lot of new issues due to the progression of my facioscapulohumeral muscular dystrophy, along with joint issues from a head-on collision with a drunk driver years ago, and just getting old. As I’ve grown weaker and stiffer and pain levels have…
