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Comedian Fiona Cauley Shares Humor While Raising Disability Awareness
Stand-up comedian Fiona Cauley has appeared on “The Tonight Show Starring Jimmy Fallon,” toured with Nikki Glaser, and is a regular performer at Zanies Comedy Club in her hometown, Nashville, Tennessee. Fiona tries to make comedy venues more aware of accessibility barriers. The 29-year-old lives with Friedreich ataxia (FRDA or FA), a progressive neuromuscular condition…
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I am watching a child lose his independence for the third time
My son Charlie has recently been unable to get into his power wheelchair on his own, and I know I am watching him lose the ability to ambulate, as I did with two of my other sons. Charlie, 15, like his brothers Max, 20, and Rowen, 17, lives with Duchenne muscular dystrophy (DMD). I also…
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Clinical Research Alert: Phase 3 Study of Pridopidine in Individuals with ALS
Researchers at participating clinical research sites are seeking individuals with amyotrophic lateral sclerosis (ALS) for a phase 3 study (PREVAiLS). This study will evaluate the safety and efficacy of the investigational drug pridopidine to treat ALS. Pridopidine, which is being developed by Prilenia Therapeutics and Ferrer, has shown neuroprotective effects in multiple preclinical studies, as…
