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Letter from Italfarmaco about patient deaths while taking givinostat
Italfarmaco issues a letter to address the recent online discussions about the individuals who have […]
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Italfarmaco Addresses Patient Deaths, DUVYZAT Safety Profile in Community Letter
Italfarmaco, the company that developed DUVYZAT® (givinostat), has shared a letter to the Duchenne muscular […]
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DMD treatment Agamree may avoid issues of traditional steroids
Data from two clinical trials confirm that Agamree (vamorolone), an approved anti-inflammatory treatment for people […]
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This month, I’m celebrating my birthday and disability inclusion
This Saturday, I turn 30. My birthday lands on the same day that many of […]
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Becker Muscular Dystrophy Series Part 1: Neuromuscular Care and Genetics
The first session in PPMD’s Becker muscular dystrophy webinar series brought together clinical experts and […]
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2026 MDA conference to focus on ‘innovation driving us forward’
The Muscular Dystrophy Association (MDA) has announced the agenda for its 2026 MDA Clinical & Scientific […]
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Quest Podcast: Voices of Inclusion: Celebrating NDEAM with Disability:IN
October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, […]
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Cooking with a Disability? Yes, Chef!
Growing up as a full-time wheelchair user living with myofibrillar myopathy (MFM), 21-year-old Gabby DiSalvo […]
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I ‘muscle through’ LGMD challenges with a little bit of humor
I’ve always had a robust sense of humor. Some people have told me that I’m […]
