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FDA set to decide on deramiocel for DMD cardiomyopathy
The U.S. Food and Drug Administration (FDA) is on track to make a decision about […]
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MDA Ambassador Guest Blog: Balancing Gracefully: A Mother’s Day Reflection from Ms. Wheelchair America
Tamara Blackwell is a faith-filled wife, mother, and advocate who empowers women to rise in […]
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In life with muscular dystrophy, it’s all about the planning
Living happily with limb-girdle muscular dystrophy, as I do, requires patience, a positive attitude, and […]
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Share your NOW: The impact of up-to-date data in The Duchenne Registry
The Duchenne Registry is designed as a longitudinal (long-term) research study, collecting information from the […]
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I can’t keep up this exhausting pace as a mom, teacher, and caregiver
I am going at a pace I can’t maintain. As a former half-marathon runner, I […]
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Fire Fighters Go the Distance for MDA
Thomas Beers knew from a very young age that he wanted to be a fire […]
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Now measuring my life in pounds, ounces, minutes, and seconds
In a recent column, I talked about paring down my music rig and retiring my […]
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MDA Ambassador Guest Blog: What I’ve Learned as a Disability and Wellbeing Researcher
Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where […]
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Myotonic dystrophy patients in US face higher healthcare costs: Study
People with myotonic dystrophy (DM) use more healthcare resources and face higher associated costs than […]
