-
Nonprofit releases updated PJ Nicholoff Steroid Protocol for DMD
Parent Project Muscular Dystrophy (PPMD), a nonprofit dedicated to ending Duchenne muscular dystrophy (DMD), has […]
-
A Decade of Impact: Honoring PJ’s Protocol and Its Legacy
Ten years ago, the Duchenne community gained a vital tool for the clinical management of […]
-
Budget Reconciliation Update and the Impact on Medicaid
PPMD is closely monitoring the U.S. House of Representatives Energy and Commerce Committee markup of […]
-
How to Maximize Your College Experience by Advocating for Accommodations and Accessibility
Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles […]
-
A Message of Gratitude and Momentum: Leadership Changes at MDA
At the Muscular Dystrophy Association (MDA), we’re marking a major moment in our history. Dr. […]
-
An Update on PPMD’s Continued Strategy for Advancing Duchenne Newborn Screening
On April 3, 2025, the U.S. Department of Health and Human Services (HHS) announced the […]
-
Solve FSH invests $3M to advance ARM-201 as FSHD treatment
Solve FSH, a venture philanthropic organization, has invested $3 million to support the development of […]
-
A Fire Fighter’s Lasting Impact on the Fight Against ALS: Bob McAlvey’s Life & Legacy
Monty Nye The mission to find treatment for amyotrophic lateral sclerosis (ALS) hits especially close […]
-
MDAS gala reminds me why I advocate for my community
On April 25, the Muscular Dystrophy Association (Singapore), or MDAS, celebrated its 25th anniversary with […]
-
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this […]
